
This evening when we went to the hospital Greydon had already had his eye exam.
Yesterday one of the doctors told us the "code".
The eye doctor will almost always come back and do another check up. If he comes back in a month or so it means that everything is fine. If he comes back in a week it means there is something he doesn't like and wants to watch closely. If he comes back in two days it means there is something wrong and they are going to do a procedure.
It was a pretty slow night in the NICU and all of the doctors who were on call were not actually in the unit, so we don't have exact information yet. We do know that they are going to come back to look at his eyes again in a week.
Tomorrow we should be able to rope down a doctor to get some more specifics. We are happy to not be seeing the eye doctor in two days.
When Greydon was 10 days old he had a brain scan to look for bleeding on the brain, a common problem with preemies and a concern that had my heart pumping like an epileptic percussionist on steroids. I thought we were done with brain scans.... but no. In about a week they will be doing the next standard brain scan to look for pockets of air or unformed brain tissue, no big deal, they just cause cerebral palsy and learning disabilities, nothing to get too worked up over.... (and Calvin passes out)
Today at UVU I had a picture of Greydon up in one of my classes to use as part of one of our assignments, which isn't interesting enough to explain. A student near by cooed and complimented and earned big time brownie points. Sometimes I complain about some of the things people decide to share, but she was very tactful and the conversation naturally turned to her good friends who are up at Primary's with their little baby who was born with half of a heart. The condition involves surgeries until they are at least three years old... it get's more sad. Her friend's twin brother had a baby last year with the same condition, who very sadly did not make it. The year before the same twin brother lost another baby who was born with a severe cleft palate and severe brain issues... It is enough to make you cry.
I can't compare my situation to theirs.
I used to think that everyone who shares bad information with you when you get sick, or get pregnant, or can't get pregnant, and on and on, simply had no editing button. But I am thinking more now that we are all just searching for a personal connection. That when we see someone in pain we think that maybe they can understand what we felt like last year or last month, or ten years ago that still feels like it just happened. It is an interesting change in perspective I hadn't expected.. I'm not sure that makes sense.
After class I was on the proper floor to exit and walk across campus to the parking lot... the vending machine holding a cookie that sounded really really good was two floors down. Not only did I go down two floors to buy a cookie, and then go up those same two stories just to get back to where I started.... I took the elevator. A glass elevator.... Hey everyone look at the guy in the glass box too lazy to walk DOWN stairs... hey is he eating a cookie?
Glass elevators, highly over-rated.
Here is the blog of the couple I was telling you about earlier. I have only had the strength to glance at their site before getting choked up. My emotions are a little closer to the surface right about now than I am accustomed to.
http://gourley2004.blogspot.com/
7 comments:
What you said about having your perspective change is true. I have never thought about it before like that. I always just brushed it off as the other person wanting to up your story. But you make a great point about just trying to make a connection. Very true! What can I say? Every day is a learning day I guess :)
I just checked out that blog and I'll I can say is WOW and wonder why am I so blessed/lucky? Thanks for giving me an even greater perspective for the day!
I guess if anyhting that will make you more greatful for the things we do have. I have the cutest little song that you shouldput on your music list. Its called cuppycake by judianna castle. maybe it's wierd but I guess I am weird What do ya do?
Isn't it great when life's little revelations help us appreciate our circumstance?
I guess we can always find someone worse off then ourselves- and I guess that is comforting????
There is just something to be said for experiencing what we are here to experience, and connecting with the souls around us, no matter how big or little they are.
Very introspective; for all of us.I too believe exchanging "yeh,but, wait til I tell you......." is somehow wanting someone to say, I get it.
Love, Muzz
I checked out the blog and I know the Mom and Landon knows the Dad. Her parents are in my parents stake and we went to stake girls camp together. Also she was one of my nurses when I had Averie. (I can't even imagine being around all those babies all the time after what she's gone through.) Really puts things in perspective.
Wow, what a tiny world.
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