Ok, don't stop praying just yet... (thank you for all the thoughts and prayers by the way, it's been so touching)
This morning we're going through a little bump.
They've been starting to give him feedings, which is great. But his tummy isn't handling it very well. He's had bile coming back up through his tube yesterday and today. They are taking him back off feedings to give his digestive system a rest. There are some really serious complications that stem from this kind of problem, so although it's not a shocker, we're pretty concerned, well I'm a stress ball and Kristen is trying to act calm.
They also are upping his pressure on the oxygen because he needs more pressure in his lungs...
It's hard when people ask "how's he doing?" The nurses have seen everything, so they act all calm and nonchalant about everything, we can't help but look at everything with the worse possible scenario in mind, and then you have to try to figure out how to answer that question with a balance of the two.
He's doing well, for a 29 week premie, which by definition is not "well", but when people ask, you don't want to sound like a pessimist, but you don't want to sound like a blissful polyanna either...so you just say "fine" ....ergh.
I just got off the phone with an old family friend, well she's not old, but our families have been friends forever, and she has years of experience as a NICU nurse. She calmed be back down a little. I suggested she move to UT for the next few months, I don't think she's going to take me up on that.
4 comments:
I am sure these next few months are going to be extremely trying. You are all in our thought and prayers. McKenna says during her prayer "and bless that teeny baby" I need to inform her that he now has a darling name! Thanks for keeping us posted on everything.
Thanks for keeping us posted. The valleys will certainly make the peaks more magnificient. I thought about you guys all night, hang in there, we love you all soooo much.
It's so sobering to realize how precarious life is for a baby this tiny. Thanks for sharing. We continue to keep all three of you in our prayers. He is so precious, and modern medicine so miraculous. Keep holding on. There will be bumps, but God willing, things will continue to get better each week. What his tummy can't handle today, it will down the road. We're praying for all your care givers, as well. Wish there was something more we could do. Let us know.
Calvin-
Just looking at the videos of your adorable, tiny tiny baby chokes me up. I will definitely be praying for you. I hope he only gets better.
Emily (Dixon)
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